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  • Stephanie M. Hoover
  • Shristi Tiwari
  • Jimin Kim
  • Melissa Green
  • Al Richmond
  • Mysha Wynn
  • Kyle Simone Nisbeth
  • Stuart Rennie
  • Giselle Corbie-Smith
2019
Ethnicity & Disease 29 (2) : 309-315

Purpose: Stakeholder engagement and community-engaged research (CEnR) are recognized as approaches necessary to promote health equity. Few studies have examined variations in stakeholder perspec­tives on research ethics despite the potential for meaningful differences. Our study exam­ines the association between stakeholders’ characteristics and their perception of the importance of 15 stakeholder-developed CEnR ethical statements.

Design: Quantitative analysis of close-end­ed Delphi survey.

Participants: We recruited a national, non-random, purposive sample of people who were eligible if they endorsed conducting CEnR in public health or biomedical fields. Participants were recruited from publicly available information, professional email distributions, and snowball sampling.

Main Outcome Measures: We designed our close-ended Delphi survey from the results of 15 CEnR ethical statements, which were developed from a consensus develop­ment workshop with academic and com­munity stakeholders.

Results: 259 participants completed the Delphi survey. The results demonstrated that stakeholders’ characteristics (affiliation, ethnicity, number of CEnR relationships, and duration of CEnR partnerships) were not associated with their perception of the importance of 15 ethical statements.

Conclusions: The strong agreement among stakeholders on these broad, aspirational ethical statements can help guide partner­ships toward ethical decisions and actions. Continued research about variability among stakeholders’ ethics perspectives is needed to bolster the capacity of CEnR to contribute to health equity.

Convergence Despite Divergence Stakeholder Ethics_4.18.19