Talk 2015 September 17 @ 12pm – 1pm,
Brinkhous-Bullitt 219 (TraCS Conference Room).
Research Ethics Grand Rounds.
Jennifer Fishman, McGill University.
In the last few years, the landscape of translational genomic research has been changing and is no longer confined to strictly academic research or institutionalized health care. New voices from advocacy organizations, direct-to-consumer (DTC) companies, hybrid forms of university/advocacy/corporate research groups, and most recently ‘citizen scientists’ are shaping significant outgrowths in both research and transmission of biomedical knowledge. Drawing on data from interviews with leading figures in participant-driven genomic research, this presentation will explore how these groups challenge and complicate traditional approaches to and the ethics of genomic research as the boundaries are challenged between experts and amateurs, funders and researchers, institutions and scientists.
Jennifer Fishman, PhD is Assistant Professor in the Bioemedical Ethics Unit at McGill University. Jennifer is also a Visting Scholar in the Center for Bioethics for the school year.
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