John Conley, Jean Cadigan, Arlene Davis.
In Discursive constructions of consent in the legal process.
In this chapter we analyze the linguistic and discursive aspects of a specialized form of consent: informed consent given by people who contribute DNA samples to genomic biobanks, which are repositories of genetic material and derived data stored for present and future research. Our particular focus is on the understandings of informed consent expressed by research subjects. Our principal finding is that subjects express limited understanding of informed consent, and the understandings they do express have little in common with those of the research establishment…