Social and Ethical Aspects of Research on Curing HIV A Working Group Co-Principle Investigators: Stuart Rennie Joseph Tucker One of the defining qualities of living with HIV has been that it is incurable, and this tenet has powerfully formed and disrupted individual, organizational, and institutional identities. But recent medical advances have contested this basic fact, … Read more
Principle Investigator: Jill Fisher This project investigates healthy volunteers’ patterns of participation in Phase I clinical trials, with particular attention to the differences among minority groups. The majority of healthy volunteers in clinical trials are serial participants, meaning that they enroll repeatedly in studies, so the research has a longitudinal design to understand volunteers’ patterns … Read more
ARESA Co-Principal Investigators: Keymanthri Moodley (University of Stellenbosch, South Africa) Stuart Rennie (UNC) A collaboration between C:B Core Faculty member Stuart Rennie and colleagues at Stellenbosch University in South Africa has been awarded a grant from the Fogarty International Center of NIH to support research ethics education inSouthern Africa. The Advancing Research Ethics training in Southern … Read more
Co-Principal Investigators Eric Juengst (UNC) Jennifer Fishman (McGill University) Richard Settersten (Oregon State University) “Personalized Genomic Medicine” (PGM) has become a banner which unites a very wide array of scientific, clinical, and commercial initiatives, from medical sequencing and pharmacogenomics research to medical school curricula, public health interventions, nutritional regimes, and direct-to-consumer “recreational” genome scanning. Across … Read more
Gabriel Lázaro-Muñoz, postdoctoral fellow at the UNC Center for Bioethics, has been selected to receive the Postdoctoral Award for Research Excellence for the 2016-2017 academic year.
A crucial decision-making skill for health researchers during community research. Minrie Greeff and Stuart Rennie. Published 2016 May 26 in The Journal of Empirical Research on Human Research Ethics. Health researchers conducting research in the community are often faced with unanticipated ethical issues that arise in the course of their research and that go beyond … Read more
Anne Drapkin Lyerly, Carleigh Krubiner, Ruth Faden. Op ed published April 2016 in The Baltimore Sun. The rapid spread of the Zika virus — and its now clear association with microcephaly in babies exposed prenatally — has put extraordinary pressure on the research community to develop a vaccine as rapidly as possible. But accelerating the … Read more
Jill A. Fisher. A book review of People’s Science: Bodies and Rights on the Stem Cell Frontier, Ruha Benjamin, 2013. Published May 2016 in Contemporary Sociology. At a time of profound social inequalities in the United States, high-tech medicine is nonetheless touted for its potential to save all lives through miracle cures. The fact that … Read more
Jill A. Fisher, Marci D. Cottingham. Published April 2016 in Public Understanding of Science. Fictional television shows and films convey cultural assumptions about scientists and the research enterprise. But how do these forms of entertainment portray medical research participants? We sampled 65 television shows and films released between 2004 and 2014 to determine the ways … Read more
Mara Buchbinder, Dragana Lassiter, Rebecca Mercier, Amy Bryant, Anne Drapkin Lyerly. Published April 2016 in the Hastings Center Report. “It’s almost like putting salt in a wound, for this person who’s already made a very difficult decision,” suggested Meghan Patterson (an alias), a licensed obstetrician-gynecologist whom we interviewed in our qualitative study of the experiences … Read more
