Eric Juengst participated in two workshops on behalf of the ELSI 2.0 International Collaboratory for Genomics and Society Research in Kyoto, to discuss cross-cultural perspectives on clinical genomic sequencing, research data-sharing, and dynamic consent, with colleagues from Japan, Australia, Singapore, Korea, Germany, and the UK.
The first workshop, chaired by Prof. Kazuto Kato of the University of Osaka, helped the Japanese Agency for Medical Research and Development’s newly consolidated funding program for ELSI research develop its priorities. http://www.med.osaka-u.ac.jp/eng/introduction/research/social/ethics. The second workshop, chaired by Prof. Jane Kaye from Oxford University, explored the challenges of implementing “dynamic consent” models in international genomic studies towards, with support from the Diawa Anglo-Japanese Foundation. https://www.ndph.ox.ac.uk/research/centre-for-health-law-and-emerging-technologies-helex/events-2
The ELSI 2.0 Collaboratory was founded at the 2011 NIH ELSI Congress in Chapel Hill to facilitate international research on the ethical, legal and social implications of advances in human genomics and genetics, and is open to all. (https://elsi2workspace.tghn.org/).