The UNC Provost’s Office has awarded Eric Juengst a Kenan Foundation-supported university sabbatical for the Spring Semester of 2022. Juengst will pursue research exploring the revival of scientific interest in “good” human genes, by examining different forms of beneficial genomic variant research and their ethical and social implications. Kenan Research Leave proposals are awarded annually … Continued

The advent of human gene editing has stimulated international interest in how best to govern this research. However, research on stakeholder views has neglected scientists themselves. We surveyed 212 scientists who use gene editing in their work. Questions captured views on oversight and use of somatic and germline human gene editing for treatment, prevention, and … Continued

Dr. Victor McKusick was a founding member of the joint NIH-DOE working group that designed the federal effort to address the ethical, legal, and social implications of the US Human Genome Project in 1989. A key feature of this effort was its commitment to anticipating genomics-driven questions before they became urgent practical dilemmas, by complementing … Continued

Abstract Dr. Victor McKusick was a founding member of the joint NIH-DOE working group that designed the federal effort to address the ethical, legal, and social implications of the US Human Genome Project in 1989. A key feature of this effort was its commitment to anticipating genomics-driven questions before they became urgent practical dilemmas, by … Continued

I am happy to announce that after 11 years as Director of the UNC Center for Bioethics, I am turning over that leadership role to Arlene Davis, RN, JD, effective July 1, 2021. It has been immensely fulfilling to oversee the flourishing of the C:B over the last decade. I am deeply grateful to the … Continued

BACKGROUND: Whole-genome sequencing (WGS) of Mycobacterium tuberculosis allows rapid, accurate inferences about the sources, location and timing of transmission. However, in an era of heightened concern for personal privacy and science distrust, such inferences could result in unintended harm and undermine the public´s trust. METHODS: We held interdisciplinary stakeholder discussions and performed ethical analyses of … Continued

Hutton Ethics Lecture, RESEARCH + INNOVATION WEEK / 21, University of Cincinnati Presentation link