Challenging the Boundaries Between Treatment, Prevention, and Enhancement in Human Genome Editing
July 23, 2024
Tag: Jean Cadigan
The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research
June 29, 2023
The Slippery Slope of Prenatal Testing for Social Traits.
April 4, 2023
Question Prompt Lists and Parental Question Asking in Pediatric Specialty Appointments: A Randomized Controlled Trial.
January 27, 2023
The burden of COVID-19 on caregivers of children with suspected genetic conditions: A therapeutic odyssey
October 30, 2022
Scientists’ Views on Scientific Self-Governance for Human Genome Editing Research
August 19, 2022
Beyond the Medical: The ELSI of Polygenic Scores for Social Traits
August 12, 2022
UNC Center for Bioethics core faculty member Jean Cadigan, Ph.D., along with a multidisciplinary team of researchers from across the country, was recently awarded an R01 grant from the National Human Genome Research Institute at NIH entitled, Beyond the Medical: The ELSI of Polygenic Scores for Social Traits.
Hospital Policies During COVID-19: An Analysis of Visitor Restrictions
January 23, 2022
Abstract Objective: In response to the COVID-19 pandemic, hospitals have developed visitor restriction policies in order to mitigate spread of infection. We reviewed hospital visitor restriction policies for consistency and to develop recommendations to highlight fair and transparent restrictions, exceptions, and appeals in policy development and implementation. Design: Collection and...
Attitudes About Analytic Treatment Interruption (ATI) in HIV Remission Trials with Different Antiretroviral Therapy (ART) Resumption Criteria
January 8, 2022
HIV remission trials often require temporary stopping of antiretroviral therapy (ART)—an approach called analytic treatment interruption (ATI). Trial designs resulting in viremia raise risks for participants and sexual partners. We conducted a survey on attitudes about remission trials, comparing ART resumption criteria (lower-risk “time to rebound” and higher-risk “sustained viremia”)...
Online Training as a Means to Improve the Understanding of Ethical, Legal, and Social Aspects of Biobanking Research: Stakeholder Perspectives from South Africa
December 20, 2021
Introduction: The proliferation of biobanking activities demand a review of current training opportunities for service providers and researchers, specifically related to the ethical, legal, and social issues (ELSI) of biobanking research. Such information could be useful for planning and developing an educational course. However, it is equally important to explore...