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The burden of COVID-19 on caregivers of children with suspected genetic conditions: A therapeutic odyssey

October 30, 2022

Ethical Criteria for Improved Human Subject Protections in Phase I Healthy Volunteer Trials

October 12, 2022

Margaret Waltz receives School of Medicine Dean’s Performance Award

October 5, 2022
Margaret Waltz, PhD, of the UNC Department of Social Medicine and the UNC Center for Bioethics, was recently honored with the School of Medicine Dean’s Performance Award. The award is given out every year to individuals within the UNC School of Medicine who make significant contributions towards the School’s standing...

Department of Social Medicine Research Associate Margaret Waltz, PhD

September 16, 2022
Waltz developed and implemented multiple innovative methodologies with the goal of translating research results to improving patient care and medical trainee education. First, Waltz created a method using audio recordings to analyze patient and provider communication during pediatric genetics and neurology appointments across clinics in North Carolina. This novel research...

Mission Creep or Mission Lapse? Scientific Review in Research Oversight.

September 1, 2022

Scientists’ Views on Scientific Self-Governance for Human Genome Editing Research

August 19, 2022

Beyond the Medical: The ELSI of Polygenic Scores for Social Traits

August 12, 2022
UNC Center for Bioethics core faculty member Jean Cadigan, Ph.D., along with a multidisciplinary team of researchers from across the country, was recently awarded an R01 grant from the National Human Genome Research Institute at NIH entitled, Beyond the Medical: The ELSI of Polygenic Scores for Social Traits.

Hospital Policies During COVID-19: An Analysis of Visitor Restrictions

January 23, 2022
Abstract Objective: In response to the COVID-19 pandemic, hospitals have developed visitor restriction policies in order to mitigate spread of infection. We reviewed hospital visitor restriction policies for consistency and to develop recommendations to highlight fair and transparent restrictions, exceptions, and appeals in policy development and implementation. Design: Collection and...

Translational Science: A Survey of US Biomedical Researchers’ Perspectives and Practices

December 23, 2021
This national survey aimed to identify how biomedical researchers using vertebrate animals viewed issues of significance for translational science, including oversight and public engagement, and to analyze how researcher characteristics and animal model choice correlate with those views. Responses from 1,187 researchers showed awareness of, and concerns about, problems of...

The View from the Benches: Scientists’ Perspectives on the Uses and Governance of Human Gene-Editing Research

August 26, 2021
The advent of human gene editing has stimulated international interest in how best to govern this research. However, research on stakeholder views has neglected scientists themselves. We surveyed 212 scientists who use gene editing in their work. Questions captured views on oversight and use of somatic and germline human gene...