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  • Suzanne Day
  • Allison Mathews
  • Meredith Blumberg
  • Thi Vu
  • Hailey Mason
  • Stuart Rennie
  • JoAnne D. Kuruc
  • Cynthia L. Gay
  • David M. Margolis
  • Joseph D. Tucker
2020
AIDS 34 (8) : 1195-1204
Full article

Abstract

Objective:

To assess the potential for crowdsourcing to complement and extend community advisory board (CAB) feedback on HIV clinical trials. Crowdsourcing involves community members attempting to solve a problem and then sharing solutions.

Methods:

CAB and crowdsourced approaches were implemented in the context of a phase 1 HIV antibody trial to collect feedback on informed consent, participation experiences, and fairness. CAB engagement was conducted through group discussions with members of an HIV CAB. Crowdsourcing involved open events intended to engage the local community, including interactive video modules, animated vignettes, and a creative idea contest. Open coding and analysis of emergent themes were conducted to compare CAB and crowdsourced feedback.