The project is entitled Utilizing a Lupus Clinical Trials Network to Advance Diversity and Representation in Clinical Trials: Perspectives, Preferences, and Unmet Needs of Patients, Providers, and Stakeholder Agencies. The research team will leverage novel data sources to advance evidence for enrollment of underrepresented populations in lupus clinical trials within the Lupus Clinical Investigators Network … Continued

UNC Center for Bioethics is pleased to see our core faculty member Jill Fisher, Ph.D., has been awarded the 2022 Donald W. Light Award for Applied or Public Practice of Medical Sociology for her book Adverse Events: Race, Inequality, and the Testing of New Pharmaceuticals. The Donald W. Light award is given out by the … Continued

James Weldon Johnson Institute for the Study of Race and Difference, Emory University Presentation link

Jill Fisher chaired the NIH Continuous Special Emphasis Panel on Societal and Ethical Issues in Research (SEIR) study section in June and December 2021 and will chair the March 2022 meeting. The Continuous Special Emphasis Panel on Societal and Ethical Issues in Research SEIR Study Section reviews applications focusing on ethical issues in human subjects’ … Continued

This national survey aimed to identify how biomedical researchers using vertebrate animals viewed issues of significance for translational science, including oversight and public engagement, and to analyze how researcher characteristics and animal model choice correlate with those views. Responses from 1,187 researchers showed awareness of, and concerns about, problems of translation, reproducibility and rigor. Surveyed … Continued

Race and Regulation Lecture Series organized by the Program on Regulation at the University of Pennsylvania Carey Law School.   Presentation Link

The Hastings Center recently announced the election of 24 new fellows, which include Jill A. Fisher, PhD and Rebecca L. Walker, PhD in the UNC Department of Social Medicine. The Hastings Center is pleased to announce the election of 24 new fellows. Hastings Center fellows are a group of more than 200 individuals of outstanding … Continued

In Paul Thacker’s article for BMJ Investigation “Covid-19: Researcher blows the whistle on data integrity issues in Pfizer’s vaccine trial,” he outlined poor practices uncovered by a whistleblower at a research company that was contracted to conduct Pfizer’s covid-19 vaccine trial. In the article, questions were raised about the data’s integrity and oversight, and Dr. Fisher commented … Continued

Jill Fisher has recently been awarded a 3-year grant from the National Science Foundation that is focused on university hiring practices for and job market experiences of dual-career academics. With long-time research collaborator Prof. Torin Monahan, this Co-PI project will provide a comprehensive analysis of universities’ dual-career policies and practices and will generate resources for … Continued

Background/aims Financial compensation for research participation is a major focus of ethical concern regarding human subject recruitment. Phase I trials are sometimes considered to be a lucrative source of income for healthy volunteers, encouraging some people to become “professional guinea pigs.” Yet, little is known about how much these clinical trials actually pay and how … Continued