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Hospital Policies During COVID-19: An Analysis of Visitor Restrictions

January 23, 2022

Abstract Objective: In response to the COVID-19 pandemic, hospitals have developed visitor restriction policies in order to mitigate spread of infection. We reviewed hospital visitor restriction policies for consistency and to develop recommendations to highlight fair and transparent restrictions, exceptions, and appeals in policy development and implementation. Design: Collection and analysis of public-facing visitor restriction … Continued

Arlene Davis Named Director of UNC Center for Bioethics

June 29, 2021

Arlene M. Davis, JD, associate professor in the UNC Department of Social Medicine and director of the Clinical Ethics Service at UNC Hospitals, has been named director of the UNC Center for Bioethics, effective July 1. “I look forward to my director role in Center. Our core faculty members are outstanding and the Center’s research, … Continued

Passing the Torch at the UNC Center for Bioethics!

May 27, 2021

I am happy to announce that after 11 years as Director of the UNC Center for Bioethics, I am turning over that leadership role to Arlene Davis, RN, JD, effective July 1, 2021. It has been immensely fulfilling to oversee the flourishing of the C:B over the last decade. I am deeply grateful to the … Continued

Reconsidering Scarce Drug Rationing: Implications for Clinical Research

March 15, 2021

Hospital systems commonly face the challenge of determining just ways to allocate scarce drugs during national shortages. There is no standardised approach of how this should be instituted, but principles of distributive justice are commonly used so that patients who are most likely to benefit from the drug receive it. As a result, clinical indications, … Continued

A New Governance Overnance Approach to Regulating Human Genome Editing

December 10, 2020

For years, genomic medicine—medicine based on the growing understanding of the genetic contribution to many diseases and conditions—has been hailed as the future of medical treatment, but it has thus far had limited effect on day-to-day medical practice. The ultimate goal of genomic medicine has always been the ability not just to identify dangerous gene … Continued

Reconsidering Scarce Drug Rationing: Implications for Clinical Research

November 30, 2020

Hospital systems commonly face the challenge of determining just ways to allocate scarce drugs during national shortages. There is no standardised approach of how this should be instituted, but principles of distributive justice are commonly used so that patients who are most likely to benefit from the drug receive it. As a result, clinical indications, … Continued

Incidental Enhancements: A Neglected Governance Challenge for Human Genome Editing Research

June 25, 2020

The increasing pace and international diffusion of developments in human genome editing research have prompted ongoing efforts to develop responsible governance for such research. One point of broad agreement across these efforts is that human genome editing research should prioritize medical applications over attempts to enhance human traits because of the moral concerns the latter … Continued

Professionalism and Ethics: A Standardized Patient Observed Standardized Clinical Examination to Assess ACGME Pediatric Professionalism Milestones

May 1, 2020

Introduction: The ethical skills fundamental to medical practice encompass a large portion of the Accreditation Council for Graduate Medical Education (ACGME) professionalism milestones. Yet many ethical practices are difficult to reduce to milestone frameworks given the variety of traditions of moral reasoning that clinician-trainees and their colleagues might properly employ. Methods: We developed an observed … Continued

Is Real-Time ELSI Realistic?

May 1, 2020

Background: A growing literature has raised—skeptically—the question of whether cutting-edge scientific research can identify and address broader ethical and policy considerations in real time. In genomics, the question is: Can ELSI contribute to genomics in real time, or will it be relegated to its historical role of after-the-fact outsider critique? We address this question against … Continued