Skip to main content

Reconciling Local vs. Global Governance in Networked Biorepositories

Thursday, November 30, 2017
Location: MacNider 021
Kyle Brothers and Aaron Goldenberg

As biomedical research generates ever-growing requirements for large sample sizes, it has increasingly depended on biorepositories to provide biosamples and data. These large collections decrease the time and expense required to answer important research questions, however, a single biorepository is often inadequate. As big data questions have come to play a central role in medical research, multiple biorepositories are being linked into networks with the aim of building giant “virtual” biorepositories. In this presentation, we will discuss the ethical and legal issues that arise for biorepository networks.

 

Kyle Brothers, MD, PhD is Associate Professor in the Department of Pediatrics at the University of Louisville and is affiliated with the Institute for Bioethics, Health Policy, and Law. His research focuses on the ethics of genetic research and the translation of genomic technologies into clinical care.

 

Aaron Goldenberg, PhD, MPH is Associate Professor in the Department of Bioethics at Case Western Reserve University. He is also Assistant Director of the Center for Genetic Research Ethics and Law. His work focuses on the ethical and social issues surrounding advances in public health genomics, biobanking, health disparities, and the intersection between bioethics and public health ethics.

 

Brothers-Goldenberg Seminar- 2017.11.30-b