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Origin Myths in Bioethics

December 20, 2016
Bioethics, the term now usually standing in for Biomedical Ethics, is a field of medical anthropological engagement. While many anthropologists and other social scientists work with bioethicists and physicians, this paper instead takes Bioethics as a topic of cultural research from the perspective of Cultural Bioethics and Interpretive Medical Anthropology....

Can Genomics Tell Me Who I Am? Essentialistic Rhetoric in Direct-To-Consumer Dna Testing

December 20, 2016
Recently, a high number of companies have emerged that offer online direct-to-consumer DNA testing. We investigate these consumer genomics companies through the lens of identity. We find that many of them appeal to a kind of “genetic essentialism”. We suggest that this appeal is key to understanding why consumers are...

Research Ethics Recommendations for Whole-Genome Research

December 20, 2016
Interest in whole-genome research has grown substantially over the past few months. This article explores the challenging ethics issues associated with this work.

Boundaries and Labels

December 20, 2016
Ambitions and efforts to control human aging are presently flourishing within biomedicine, but under the banners of two competing professional camps. On one side is an “anti-aging” movement of entrepreneurs and clinicians, offering dietary supplements, cosmetics, hormone injections, and other goods and services to combat aging and its effects. On...

Antiaging Medicine and Mild Cognitive Impairment

December 20, 2016
The claim that aging itself is treatable or even preventable has repeatedly been made over the centuries. Antiaging medicine is the current leader of approaches that even claim that geriatrics as a discipline will become increasingly unnecessary. The concept of mild cognitive impairment (MCI) as a condition intermediate between normal...

Normal Aging, Disease Prevention, and Medical Ethics

December 20, 2016
The growth of public and professional interest in “anti-aging” interventions raises an ethical problem for the medical profession with important policy implications: is human aging an appropriate target for medical intervention? At present there is nothing that medicine can prescribe to combat aging that has any scientific validation (Olshansky, Hayflick,...

Ethical Issues in Identifying and Recruiting Participants for Familial Genetic Research

December 20, 2016
Family-based research is essential to understanding the genetic and environmental etiology of human disease. The success of family-based research often depends on investigators’ ability to identify, recruit, and achieve a high participation rate among eligible family members. However, recruitment of family members raises ethical concerns due to the tension between...

What Next for Human Gene Therapy? Gene Transfer Often Has Multiple and Unpredictable Effects on Cells

December 20, 2016
Gene transfer often has multiple and unpredictable effects on cells. The high hope of genetic medicine for 30 years has been to develop a way of using recombinant DNA techniques to treat patients through the genes involved in their diseases. As Richard Roblin, scientific director of the Council on Bioethics...

Thresholds and Boundaries in the Disclosure of Individual Genetic Research Results

December 20, 2016
Most contemporary “gene-hunting” begins as bench science in molecular genetics and often has relatively indirect connections with the kinds of clinical services that are relevant to the education and counseling of individuals regarding genetic information. Even when bench scientists are confident that the genetic information they uncover is reliable and...

Anti-Aging Medicine

December 20, 2016
The use of interventions claiming to prevent, retard, or reverse aging is proliferating. Some of these interventions can seriously harm older persons and aging baby boomers who consume them. Others that are merely ineffective may divert patients from participating in beneficial regimens and also cause them economic harm. “Free market...